My Story
This story has been heard by many a medical professional. I've always had back and lower back pain, only as a kid be told it's "just growing pains". It never stopped when I stopped growing. My R knee became troublesome in between times. Only to be told "it's nothing, here's my an Rx for physio". Physio did nothing. Ended up having surgery. Surgery did nothing. "I don't know what's wrong" and that was that. Then, yrs later, broke my tailbone during childbirth. No treatments were ever offered. I treated myself with weekly, monthly chiropractic care and massage therapy. For years. It got expensive and only helped a bit. Raising 2 young kids, sometimes alone is "fun" with chronic back and knee pain. By this time we're into year 5 of this. Year 10, I was struck in the knee (R knee) by a large dog. It sent my body into a real tizzy. I tried physio for both knee and back. Tried anti-inflammatory drugs, and eventually (3yrs later due to wait lists and "protocol") I finally saw an orthopedic surgeon. He ran tests. Nothing he can do. Sent me to pain clinic. Another year+ later I see someone. Treatments were done with some success. 5 years into going there I move to another province. Process starts ALL OVER AGAIN because doctors don't trust my word on what has been tried with success and without. Nor do they trust my records from previous clinic/doctor. 5years in new spot, minimum treatment is being done with very short relief having me literally fight every step of the way. It's never "bad" enough. I hear. So, a daily level of 7 or more isn't bad enough? How bad does it have to be before I am taken seriously? If I say 10 then it's not believed either as I don't exhibit signs of pain. Duh. I've been living with high pain for years. I learned to cope. ON MY OWN. I have been dismissed with flicks of wrists from doctors. It's ridiculous. I do not want opiates by any stretch. I want respect and treatment. That is all. Seems to be the impossible task as I don't fit the standard and dawg forbid any doctor think outside the box for a change.
Thank you for your interest in this consultation with the Canadian Pain Task Force towards an improved approach to better understand, prevent, and manage pain in Canada.
The online consultation is now closed, and written submissions are no longer being accepted.
Feedback provided from the consultation will inform a report identifying best and leading practices, potential areas for improvement, and elements of an improved approach to pain management in fall 2020.
For more information on the Task Force, please visit the following link: https://www.canada.ca/en/health-canada/corporate/about-health-canada/public-engagement/external-advisory-bodies/canadian-pain-task-force.html
Keep in touch with us via email at CPTF cptfsecretariatsecretariatgtcsld@canada.ca
Sincerely,
Canadian Pain Task Force