CLOSED: This discussion has concluded.

Pain needs to be understood better.

I have been living with chronic pain for twenty years. In 2007 I started into the Opoid treatments, but first I tried every non opoid medication as well as every over the counter meds. In January 2020 I discovered that opoid treatments are as the professionals say for short term treatments only. I became opoid hyperalgesia probably before I discovered it in 2020. It means that they created more pain than they helped. Since I no longer could take opoids of any kind I began to search the web in search of a treatment. I currently take the max dose of lyrica/pregablin and have for 15 years a relative safe and good drug for those who react well to it. So 15 years of several doctors, surgeons, pain specialists to no diagnosis to what is causing my pain. First step was to get Mri,s of my entire spine. Second step was to open a pockethealth account to upload my Mri,s to give access to them anywhere in the world through the web. Third step download a Mri viewer so i could actually view my scans, this took a lot of youtube tutorials to know what I was looking at. Then I was able to see all my problems. One disease I diagnosed in one month that doctors missed in fifteen years was something called Adhesive Arachnoiditis which I had confirmed by my neuroligist and neuroligist radioligist. This disease was discovered in 1907 and here we are 100 years later and as far as and top surgeons know there are know specialists in Toronto. Now one other thing i would like to mention If you are recieving spinal injections of depo-medrol you need to check out the product monagraph on health canada,s web site. This drug is not for Intra-thecal injections according to the manufacturer pfiser.

Thank you for your interest in this consultation with the Canadian Pain Task Force towards an improved approach to better understand, prevent, and manage pain in Canada. 

The online consultation is now closed, and written submissions are no longer being accepted. 

Feedback provided from the consultation will inform a report identifying best and leading practices, potential areas for improvement, and elements of an improved approach to pain management in fall 2020. 

For more information on the Task Force, please visit the following link: https://www.canada.ca/en/health-canada/corporate/about-health-canada/public-engagement/external-advisory-bodies/canadian-pain-task-force.html  

Keep in touch with us via email at CPTF cptfsecretariatsecretariatgtcsld@canada.ca 

Sincerely, 

Canadian Pain Task Force