Marfan pain has really horribly changed my life!

Being born with Marfan syndrome and misdiagnosed until I was 53 really sucks. Not only the fact that many things will bother me as I age needlessly as my scoliosis could have been operated on to fix my debilitating back pain. But in trying to get relief from it I suffered a stroke which might not have occurred had I been pain free. Manipulating my back and neck pain often with 2 people trying to crack my neck and back and manipulate it is quite horrible to even think of now especially when my cardiologists and surgeons just shutter when he here what I had done in the past while I had been living with an aneurism the size of a grapefruit ready to burst at any time. 8.2cm before it was finally recognized by my urologist and anesthesiologist before getting kidney stones blasted at 52. While wheeling me in they told me Rob you did a great job explains all of your health ailments and surgeries through the years but you never told us about your major heart problem? Talk about a shock to the system for me!!!! But after this procedure then the 7 & 1/2 hours of open heart surgery, Marfan diagnosis, then pacemaker and pain management injections every 3 months I have learned how much my life has changed. COVID-19 is another scary time and even worse is everybody gets money it seems from it but someone who has not made a cent in 5 years now and seriously wtf about me!!! Chronicle pain sucks as does Marfan misdiagnosis and I wish the govt would do something for those in need!!!!