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Health Canada has initiated a public consultation to collect input and ideas for the purpose of developing a framework on palliative care. This consultation will run for three months from May to July, 2018. During this time we will engage Canadians on themes like: advance care planning, person and family-centred care, access issues, special populations,health care provider training and supports,caregiver needs, and community engagement. Please bookmark this page and join us regularly. We hope that you join the discussion here, and then take it to your circle of family and friends. Palliative care will impact all of us at some point in our lives, so let’s start the conversation now.
“Access to palliative care is an important issue for many Canadians and these consultations are an important step in helping to improve Canadians’ access to services. We look forward to hearing views from across the country to help us develop a framework for palliative care in Canada.”
The Honourable Ginette Petitpas Taylor Minister of Health
Prior to participating in this consultation, please review the Privacy Notice for more information on your privacy rights.
Health Canada has initiated a public consultation to collect input and ideas for the purpose of developing a framework on palliative care. This consultation will run for three months from May to July, 2018. During this time we will engage Canadians on themes like: advance care planning, person and family-centred care, access issues, special populations,health care provider training and supports,caregiver needs, and community engagement. Please bookmark this page and join us regularly. We hope that you join the discussion here, and then take it to your circle of family and friends. Palliative care will impact all of us at some point in our lives, so let’s start the conversation now.
“Access to palliative care is an important issue for many Canadians and these consultations are an important step in helping to improve Canadians’ access to services. We look forward to hearing views from across the country to help us develop a framework for palliative care in Canada.”
The Honourable Ginette Petitpas Taylor Minister of Health
Prior to participating in this consultation, please review the Privacy Notice for more information on your privacy rights.
What barriers are preventing you from accessing
palliative care for yourself? / What barriers prevented you from accessing
palliative care for someone you are caring for?
Early palliative care has been shown to improve
quality of life, symptom management and patient satisfaction with care.
However, stigma associated with the term "palliative care" may be a barrier to
timely referral and could deprive patients and caregivers of the full benefits
of palliative care.
Some people think that there is stigma around
the term “palliative care”. Have you experienced this? If so, what could be
done to reduce the stigma?
60% of Canadians think it is important to talk
about end of life care, but only 5% have talked to their doctor about it.
(Canadian Hospice Palliative Care Association, What Canadians Say: The Way
Forward Survey Report, for The Way Forward initiative, Harris/Decima: 2013)
We
are often uncomfortable talking about end of life care issues. But palliative
care is about living your life – and living it well - right to the
end. You can’t know how or when that will be, but you can learn what may
be available to you and share your wishes with your family and community.
Creating an advance care plan can help you think about and focus on doing what’s
important to you now and in the future.
Have you heard about Advance Care Plans? Do you
have one? If so, how did you hear about it? Who raised the subject with you?
How did that make you feel? Do you feel confident that your end of life care
wishes will be understood and respected?